September 29, 2000

U. of Pennsylvania, Doctors, and Ethicist Are Named in Lawsuit Over Gene-Therapy Death

By BEN GOSE

In a lawsuit filed last week, the family of an Arizona teenager who died during a gene-therapy experiment at the University of Pennsylvania named as defendants the institution and its research team, as well as the ethicist who provided guidance on the procedure.

The suit could be important in two respects -- establishing legal vulnerability for practitioners of medical ethics, a relatively new field, and determining appropriate levels of disclosure for

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